7yrs on and in the NHS not much has changed except that now CBT is prescribed for CFS and soon compliance will affect access to Benefits. I think this is dangerous territory.

As well as the physical symptoms, severe cognitive deficit re-wrote my life. I had watched my mother die of Alzheimers, I knew the early signs of dementia; I began to experience them. Loss of memory, confusion, dramatic drop in IQ on top of increasing physical disability.
People often forget that the quality of consciousness is intimately linked to all of our attributes. It is not being yourself and being a bit forgetful, you are changed. no longer who you were and as it gets worse so you become less.

I have returned to a place where I can understand, and function in, the world. I am not as able in some ways but more effective in others. There seems to me to be a critical point within consciouness where ‘I AM’ has meaning. When you lose that you don’t necessarily appreciate it, but when you regain it; that is Recovery.

I had to do much more than just drink coffee to get to this point and who knows if a ‘cure’ is out there but thank god for neural plasticity.

A Cup Of Coffee a Day,
Keeps Dementia Away!!!